IF YOU SUFFER FROM NARCOLEPSY AND TIRED OF THE DREAMS AND INCOHERENT LIFESTYLE PLEASE READ.
I live in the state of Washington and have been suffering for 27 years with Narcolepsy (Idiosyncratic). The disorder does not allow me to follow the normal sleep cycle in regards to the 5 stages of sleep. Ihave been fully documented to skip all stages and go directly to stage 5 REM within seconds of lying down. This disorder is completely controlled by the regular use of Marijuana. Ihave had a medicinal MJ Permit For 7 years. During this time I have conducted my own studies. My symptoms are sleep paralysis, all night dreams while being completely aware, severe sleep attacks, loss of memory retention, and incoherent zombieism.
The research was simple in that I allow myself to lapse every two months from usage until the dreams would return. Praying the symptoms would not return, they consistently would within two to three weeks depending on amount of usage prior to lapse, going full blown by the fourth week. I can prove with proper study and research that MJ has given me my life back. Unlike pain my condition can be weighed and measured. I am proof of the miracle herb. Surely I am not alone in that I am the only Narcoleptic benefactor from using MJ. If my theory is correct it could also benefit those that suffer REM related injuries to include sleep walking, as it is already known to suppress dreams. I also have concluded that the resins that contain THC values offer no significant benefit. This leads to the conclussion the THC is not the active ingredient and could possibly get the beneficial elements without the THC euphoria.
I will refrain from any horror stories related to my condition, those of you who have these symptoms know too well what I refer to and who this blog is directed. I can't afford the high cost of usage and due to children and lack of facilities, cannot grow. I don't have a problem going without as far as any withdrawals or the desire until the dreams start. I HATE dreams. I have lost my $70,000 a year job as a result of Georgia Pacific not honoring my permit through a random drug screen 2 years ago. I am having difficulty finding work and have not been employed since. But at least I'm well as long as I have the money.
Again, I know for a fact this can be documented and surely warrants research in that it can be measured and weighed. I have tried all the available amphetamines, Narc specifics i.e. Provigil, and anti-depressants of which merely cover up the underlying condition and are not affective because they don't contribute to the root cause.
In short, I am looking for validation of others and seeking some kind of voice to lobby the research through an existing organization or start one up, and would be willing to participate in any program that is currently available.
Send comments to cbstotts2@hotmail.com
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I am a diagnosed narcoleptic and I have found much relief in a Indica dominate strain. It helps me sleep deeper so that I feel very refreshed the next day. Too bad I live in Alabama where it is very illegal. I wish I could get a mmj card. You are definitely not alone.
ReplyDeleteDid you try other types before that did not work as well? I don't know what my type is. It's oil, and its 1/2 and 1/2 BCD and THC. I also have tincture, which I haven't tried yet. It's 20 to 1.
Deletehow much does one have to consume to help with the sleep walking?
ReplyDeleteI am sure that someone has or will do a study on this. I would say, try a Sativa strain.
DeleteI am sure that someone has or will do a study on this. I would say, try a Sativa strain.
DeleteI've been learning to treat myself for narcolepsy with MJ for almost 5 years now. My issue is I live in PA where it is highly illegal. I'm unable to get different strains to find the best ones. I have noticed the sativa dominant strains help me from having the zombieism and brain zaps during the day where I just have to lay down and go to sleep. It also helps me get out of bed when I have been concreted in from the narcolepsy. The Indica strains allow me to sleep without dreams and waking 10 plus times throughout the night tossing and turning. Luckily I've never suffered from sleep walking but I do suffer from some crazy jumping where my body jumps completely off the bed like a fish flops out of water. I have been a victim of bigfarma when I was too young to know any better and parents who wouldn't know any better. Was addicted to the Ritalin I was prescribed and had to undergoe treatment for addiction at a young age. I will never be able to reverse the damage caused. I was also prescribe a sleeping pill as well as muscle relaxers. I hated the side effects of all the drugs. I can't tell you how horrible that shit was to try and live with. I quit the sleeping pills and muscle relaxers on my own a few months after use. They did no good. They increased my narcoleptic symptoms. Had ZERO improvements. It was far more difficult to wake up and get out of bed and I always felt dazed, confused and alien. Almost like I was watching my life from a 3rd person view. Sometimes during conversation with people I will feel like I can't comprehend but it's almost like I'm not close enough and I had to mentally force myself to climb closer to the conversation to get it. You ever laying on the couch and just can't reach the remote? It is similar to that. I have gone through sleep study after sleep study traveled to numerous doctor's and was a test animal for those mother fuckers. The sleep studies revealed my to go instantly into stage 5 REM skipping all stages. I begin to dream as soon as my eyes close. Often times right at the point of going unconscious where I'm still coherent but would already be dreaming. MJ is the only thing that had ever improved all my symptoms. Truly amazing. It happened by accident too. Had just been using it recreationally and would notice effects right away with my sleep patterns and how I felt the next day. It's given me a lot back. The brain zaps have significantly reduced. I don't want to just lay in bed all day and be depressed. I've noticed a difference in improvement with each varying strain. I'm unable to do enough research on myself because it's not readily available. So here I am suffering from a life lessening disease that I did not choose and know how to help it but am unable because I'm looked at as a drug user. Simply inhumane. A great fuck you to bigfarma and a great big fuck you to all the stupid sheep out there allowing bigfarma to do what they. Wake up America your being poisoned. Holocaust of the 2000's. Your in concentration camp and don't even know it
ReplyDeleteI've been learning to treat myself for narcolepsy with MJ for almost 5 years now. My issue is I live in PA where it is highly illegal. I'm unable to get different strains to find the best ones. I have noticed the sativa dominant strains help me from having the zombieism and brain zaps during the day where I just have to lay down and go to sleep. It also helps me get out of bed when I have been concreted in from the narcolepsy. The Indica strains allow me to sleep without dreams and waking 10 plus times throughout the night tossing and turning. Luckily I've never suffered from sleep walking but I do suffer from some crazy jumping where my body jumps completely off the bed like a fish flops out of water. I have been a victim of bigfarma when I was too young to know any better and parents who wouldn't know any better. Was addicted to the Ritalin I was prescribed and had to undergoe treatment for addiction at a young age. I will never be able to reverse the damage caused. I was also prescribe a sleeping pill as well as muscle relaxers. I hated the side effects of all the drugs. I can't tell you how horrible that shit was to try and live with. I quit the sleeping pills and muscle relaxers on my own a few months after use. They did no good. They increased my narcoleptic symptoms. Had ZERO improvements. It was far more difficult to wake up and get out of bed and I always felt dazed, confused and alien. Almost like I was watching my life from a 3rd person view. Sometimes during conversation with people I will feel like I can't comprehend but it's almost like I'm not close enough and I had to mentally force myself to climb closer to the conversation to get it. You ever laying on the couch and just can't reach the remote? It is similar to that. I have gone through sleep study after sleep study traveled to numerous doctor's and was a test animal for those mother fuckers. The sleep studies revealed my to go instantly into stage 5 REM skipping all stages. I begin to dream as soon as my eyes close. Often times right at the point of going unconscious where I'm still coherent but would already be dreaming. MJ is the only thing that had ever improved all my symptoms. Truly amazing. It happened by accident too. Had just been using it recreationally and would notice effects right away with my sleep patterns and how I felt the next day. It's given me a lot back. The brain zaps have significantly reduced. I don't want to just lay in bed all day and be depressed. I've noticed a difference in improvement with each varying strain. I'm unable to do enough research on myself because it's not readily available. So here I am suffering from a life lessening disease that I did not choose and know how to help it but am unable because I'm looked at as a drug user. Simply inhumane. A great fuck you to bigfarma and a great big fuck you to all the stupid sheep out there allowing bigfarma to do what they. Wake up America your being poisoned. Holocaust of the 2000's. Your in concentration camp and don't even know it
ReplyDeleteThis comment has been removed by the author.
DeleteWhat daytime strains have worked for you? I have found great relief with nighttime indica strains but the sativa energy strains I have tried put me to sleep...
DeleteI have narcolepsy, and started a grain size portion of 1/2 and 1/2 CBD & THC. My reaction was the opposite. Dreams are wild, scary, I think I'm awake, and I can move. Anyone else react like this?
ReplyDeleteThanks for the information. I don't know what strain I'm using. It is called Wonder and it's 1/2 CBD and 1/2 THC. I'll will find the paper it came with and let you know more tomorrow if I can.
ReplyDeleteI cannot believe it! I've suffered with narcolepsy/cataplexy my whole life. It's been hard, so hard to try and anybody who has it knows the depression, tiredness, brain fog, being called lazy etc. I started smoking mj after 20+years (I'm 42). I never dared touched the drug because of work and thinking about drug tests at work I was convinced if I can't get even the most menial of jobs because of it it must be bad. Well, because of the pharm medicine I also have high blood pressure.
ReplyDeleteLong story short, I keep my bp under control with raw organic vinegar and when I had the flu my partner gave me some to take the pain away and boost my appetite (I was sick and desperate) I work for myself and have for the last several years (I'm an artist) so I figured no drug test worries about work.
To my amazement I started reading up on mj, and was astonished how far from the brown, dried, seed popping stuff I got when I was a kid.
My sleep is so much better, I wake up refreshed and my medicine from pharm is cut in half. I don't wake up at night, I'm fully functioning from waking up to bedtime. I vape it at night about an hour before bed and I feel amazing, the best I have ever felt in the morning. I still am getting over my own periodic "stigma" of smoking pot and really only smoke/vape a very small amount.
My advice to anybody reading this, I use a sativa with low thc, the indica strains I find make me foggy. It is worth trying different strains, my appetite hasn't changed, my sleep is restful, my mind is clear and I'm at half my dosage of prescribed stimulants and off the antidepressants entirely. Please, give it a try, your body, mind and soul may thank you.
Also, I only smoke organic, from a very reliable source I came to befriend. So no harmful fertilizers or chemicals, strictly organic composting fertilizer.
I fully feel your pain in more ways than one. I too have narcolepsy and have also been fired by GP. They are uncaring to our cause and fired me because I wouldn't submit to their own narcolepsy testing. MJ is the only thing I have found that gives me any relief from the day to day grind of dealing with our condition. Hang in their my friend because you are not alone. I live in Texas and cannot get a prescription.
ReplyDeleteInteresting comments. I was forced out of office as a state court trial judge (elected 4 times unopposed) by an unelected judicial commission who refused to believe my symptoms were Narcolepsy (all confirmed by the 24 hour Polysomnography) rather than alcohol abuse (I don't even drink). Although publicly disgraced with the leaks from this board of alcoholism, I did receive a disability pension, thank God.
ReplyDeletePrescribed clonazepam (to lessen the vivid dreams and Xyrem, which result in sleeping an average of 3-4 hours a night. Then Vyvanse and adderall to attempt to maintain some alertness. I am probably the only person who ha gained 50 pounds while taking Vyvanse and adderall (weight gain due to lack of sleep. The Xyrem works occasionally and even though I am fortunate that my insurance pays all but $50 a month, the retail price of $13,000 a month is offensive.
Narcolepsy is truly a terrible disease that has sidelined me for almost 4 years now. 5 years ago, I rode my bike 30 miles every Saturday. Today, I doubt I could ride a block. But when I was was working, I did manage twice to get up, shower, and drive to work--all while asleep. I was not a great driver before Narcolepsy, I suspect I was worse driving while asleep.
After reading this I may consider moving to a state that pot is legal and giving it a try. It sure can't be as harmful as taking 9 grams of GHB every night.
Wow!
ReplyDeleteThis is NOMOREDREAMS. I had to hunt down this blog, after a couple of years with no response I literally gave up, it was my second attempt to share with the public. I posted a blog in 2006 that I can't even find.
In 2014 I got my first email response and by 2018 got my last. I had about 36 responses during that time in which not a single person acknowledged that MJ had helped them. I have been thinking, all this time that I was alone. Not in that, others had a REM sleep disorder, but, that MJ was a remedy. I am emotional to see that others do exist, and that finally I have some confirmation. Since my post, 13 years ago, I have stopped worrying about it. In 2018 I tried Rick Simpson tincture, didn't seem to work, I got scared and gave up, no true follow thru. In 2019 I tried CBD only bud and again got scared and gave up, no true follow up. In 2020 I sent an email for Dr. Emmanuel Mignot at narcolepsy@stanford.edu. It read: "My name is XXXX, I have had what was diagnosed, back when, as “idiosyncratic” Narcolepsy. I understand diagnosis has come a long way, known more so now for it’s symptom’s due to the sleep cycle REM as the culprit. I have not followed up on anything regarding narcolepsy since 2009. Probably because, I have not had symptoms since 2002 and gave up trying to get and give answers. I am attempting one more time, as I have recent clarity to try again.
What if I told you I have a cure. Well it’s not a cure of course, It’ll come back. But, I do have a remedy and can prove it. I need someone to administer and document a simple polysomnogram with the ability to do something with it. 2 of them, a before and after. It seems to me, with minimal effort, anyone should consider what if?.
If you are serious about your work you should not pass this up.
XXXXX
“nomoredreams18”"
I got no response.
As of today Narcolepsy - REM sleep disorder is still not on the list for acceptable medicinal use.
Maybe with multiple benefactors grouped together we can get research to move forward.
My fight is over, I have a remedy and have not been afflicted with REM issues since my experiments way back when. I have a bad back and have no problem getting permits when needed.
Looking forward to other experiments and thoughts on the subject.
Thanks to the followers and stay away from those dreams.